Just kidding with the title, above. Making fun of the previous post, in which (just guessing) I got a bit too full of myself. Good grief. And GOOD LUCK making space in the schedule! That part made me laugh when I re-read it just now. Thank goodness for my part-time job. Thank goodness for being busy, really, because--you know what? If I weren't busy, I think I'd go crazy. When you are the primary caregiver for a person who is losing his mind, there will be times when you question your own sanity. You heard it here first, folks. (Maybe. Unless you'd been there and done that, and then I'm betting you've said it, or at least thought it.)
My husband seems to be sliding off the plateau we've been on for many months. He's less energetic, and more temperamental. The hallucinations are frequent. I'm very grateful they aren't frightening to him, like the hallucinations he had during chemotherapy. Those were awful. The current hallucinations are mostly conversations with random people--an engineer on a ship in the middle of the Atlantic, an Amish guy...
We have much for which to be grateful. We're still able to laugh, and enjoy music and friends. (And food. But don't get me started on that.)
So, when you are a full-time caregiver and a part-time employee, what do you do with your free moments? Those times when you're home with the caregivee (made that word up) -- and he is napping? In my case, anything unrelated to caregiving and the outside job. My big faves right now are watching my hair turn silver (fun, easy, inexpensive), and getting rid of stuff (fun, easy, inexpensive, and addictive).
My current focus is on cleaning out the home office. What do I need, what can I do without? The desk may be going out. Why have a desk when I can curl up on the daybed with the laptop, or the Bills file...and the tissue box. (And hey. I thought there was some kind of law that caregivers do not get head colds. Didn't I read that in the fine print somewhere? I need to know where to file an official complaint. Leave the address in the comments below, please.)
What do you do to keep yourself sane when life is hard? I'd be interested in knowing, and I bet other people would be, too.